The heavy-duty hinders infants and succours and stores the blank again It is a main reason to treat the low Figo's survival rate

The heavy-duty hinders infants and succours and stores the blank again It is a main reason to treat the low Figo's survival rate
"Why is not my child in succouring the range? Who can come to help us. " At present, the leukemia infant is being paid attention to by the society, but the infant of obstacle anaemia of heavy-duty regeneration basically wanders up and down outside the charitable door that succours. Because their family cures the disease and affords the vast debt, seek help to the charity organization, the reply often received is " There is no succour of this disease " .
There is no project succour to that the heavy-duty hinders again at home
According to a plurality of charity organization introductions with medical rescue project, there almost is not the domestic charity organization or succour project to obstacle anaemia of heavy-duty regeneration at present, as such spend money more, serious disease of children not good after healing, it is a lot of fields unwillings to touch of charity organization.
China red base will after little the intersection of angel and fund establish, the first infant succouring it passes finally after costing hundreds of thousands yuan, let red base hold one's own wrist and sigh. However, even so, little angel's fund has got off difficultly, has succoured one and another leukemia infants.
And heavy-duty regeneration obstacle anaemia infant, it is so lucky not to have.
"We have asked a lot of nationwide foundations, all say that there is not project succour of obstacle anaemia of heavy-duty regeneration. " Children hope Wang LingYan, staff member of foundation, claims, the volunteer has succoured one and hindered infants heavy-dutily, help children to look for the charity organization, raises and contributes money painstakingly, while waiting until doing the transfer operation, but find the best period that infants have already missed transplanting, have to give up.
It is an important reason to treat the low Figo's survival rate
Beijing one is banked up blood head of the department Tong ChunRong of the hospital with earth and introduced, the heavy-duty cost that hinders again is actually even greater than leukemia, and the therapeutic effect is worse than leukemia. The heavy-duty hinders a patient again because one's own immunity is extremely low, easy to infect, have very high expectations for environment of the ward, generally need to live in the separate room. In addition, this kind of patient needs to transfuse blood frequently, use antibiotic, even if not transplant temporarily, it is very high to treat the fee too, generally the therapeutic fee of hundreds of thousands yuan is very common, the a lot of one be able to cost up to a million yuan. "Can say as zero, it may be mainly because of this reason to project relief fund that heavy-duty hinder and then. "
Tong Chun holds the treatment situation that has thought of hindering the patient to the heavy-duty again and summarizes the investigation, in contrast to foreign data, but have to stop finally. "Not because does not manage well, but there is no money to manage, the patient has come to leave soon, investigate that unable to go on, feel a pain very much. "
Say base person in charge when will each is insisting on anonymity as to the succour of children serious disease too, treat Figo, the survival rate is low, a lot of charity organizations are unwilling to be exposed to one of the reasons why serious disease succour. Another influence factor is that good fund difficulties are raised. "Most enterprise, individual unwilling to give the the intersection of serious disease and infant contribute money, because money use up can see the result perhaps. "
Call upon the government to pay close attention to children's serious disease insurance
"A lot of charity organizations are unwilling to touch the succour of blood disease, I can understand, because he raises a large amount of money, can only often treat and cure a person. " Tong ChunRong says, in the ward, she sees sometimes some enterprises, individuals contribute money for the patient, but these scattered contribution behaviors, the result that often gets up is very little. She hopes to have more charity organizations to hinder a patient to set up to the relief fund specially again for the heavy-duty.
However, the charity organization is only the supplement of the government after all, Tong ChunRong says, every patient should enjoy the equal medical treatment, solve the problem fundamentally, will need efforts of the government. She thinks, the government should make more input in the health care ensure the system, narrow differentials between town and country and region difference. Such as system of medical insurance of Beijing being good, that had disease submits an expense account upper limit is the highest is 300,000 yuan, and a lot of patients coming from the other places, upper limit of their local submitting an expense account has several ten thousand yuan only.
It is introduced, succour to children's serious disease, at present, China's base will be turned to the insurance direction of public service, have set up " The special fund of the insurance for children of China " ,The public donate yuan of kind funds, can offer one one -year premium to an orphan 12 children take place great the intersection of public service and insurance of disease often for 100,000, full coverage, it is inclusive that obstacle anaemia of heavy-duty regeneration is included. After insuring, once the child is made a definite diagnosis of any kind of serious disease among them, can get 100,000 yuan to compensate.
"This project is only directed against the orphan, but begin to extend towards poor children now at first. " Will point out persons in charge above-mentioned last insurance this kind serious disease of children for base, can avoid infant due to economic reasons and the intersection of procedure and convoluted, the intersection of time and the intersection of cycle and reason such as being long that application succour, miss treating the opportunity, delay the condition.
But person in charge this say frankly the intersection of project and difficulty or relatively loud that kind style raises this, concern that serious disease succour degree yet high, and the public's cognitive level to insurance on the low side even. "Such a children's serious disease insurance should be dominated and pursued by the government, push away in all teenagers of children of the right age. "
Sound
Children's welfare ensures demanding urgently to legislate
Chinese Academy of Social Sciences the intersection of social policy and Jun Tang, general secretary of research center, think government lack ensure the intersection of medical insurance and system and special society, children of serious disease relieve the system, only by donate and raise charitablying, it is very difficult to realize it to the national children's general, fair health guarantee.
Tang Jun says, our country demands urgently to set up child's welfare and ensure the system. Charitable to medical treatment, propose being taken the lead by a certain departments or social organizations with public trust, set up and unite the information platform to the project fund of children's serious disease, combine the charitable resources of medical treatment from every aspect, avoid and offer repeatedly, excessively offer and the life hangs by a hair but can't get the coexisting of contradiction states such as any succour,etc.. Unite under the platform, according to different number, can set up concrete project fund. But the key is every special fund, should set up clear succour goal and procedure that succoured, and totally disclose to the society, let the poor disease child's parents " have ways to seek help " .
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